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New staff member  October 2017
The TTP Registry welcomes a new staff member.
Dr. Anette van Dorland will be joining the team as project manager.
Shire receives FDA Fast Track designation for recombinant ADAMTS13 (SHP655) for treatment of hereditary thrombotic thrombocytopenic purpura
https://www.shire.com/en/newsroom/2017/march/r8vsf2
Corinne Eschler is leaving the TTP Registry July 2016
Corinne Eschler finished her MD and is about to start her clinical training.
Working as a part time staff member for the central study site in Bern Switzerland, she will be leaving by end of July 2016. It was great working with Corinne Eschler, we will miss her as a reliable colleague.
Data cut for first manuscript was performed on May 22nd 2015
Thank you all for the efforts on data cleaning during the days and weeks before this date.
Magnus Mansouri says Goodbye in February 2015
After three years at the central site of the hereditary TTP registry in Bern, Magnus moves on to start his clinical training.
Magnus: "It was great to work with all of you and I am happy to see what we could achieve in the three years I was involved in this project".
First tentative data cut for analysis on the September 26th 2014
The TTP-Registry will have a data cut on the 26.09.14 for a thorough analysis of the collected information so far.
Steering Committee Meeting August 25th – 26th 2014
The second Steering Committee Meeting was held in Bern, Switzerland.
The Meeting was attended by:
CERMAKOVA Zuzana (Ostrava, CZ)
FRIEDMAN Ken (Milwaukee, US)
HRACHOVINOVA Ingrid (Prague, CZ)
KOKAME Koichi (Osaka, JPN)
KNÖBL Paul (Vienna, AUT)
KREMER HOVINGA Johanna (Bern, SUI)
von KROGH Anne-Sophie (Trondheim, NOR)
LÄMMLE Bernhard (Mainz, GER / Bern, SUI)
MANSOURI TALEGHANI Magnus (Bern, SUI)
MATSUMOTO Masanori (Nara, JPN)
SCHNEPPENHEIM Reinhard (Hamburg, GER)
VESELY Sara (Oklahoma, US)
YAGI Hideo (Nara, JPN)
Special guest: Cristie UPSHAW TRAVIS (Memphis, US)

A group picture can be seen here: http://deltamemories.blogspot.ch/2014/09/cristie-goes-to-bern.html

For the net-working dinner Miha Furlan joined the group – read his toast here: application/pdfFurlan Toast 
Recombinant ADAMTS13 - study continues (early summer 2014)
Baxter has announced to continue the awaited Phase I/II trial on recombinant ADAMTS13 by the end of the year 2014.
Details on the study can be found here: https://clinicaltrials.gov/ct2/show/NCT02216084
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